Lyla has had a rough past few days. We expected there would be some good and bad days. On Wednesday she had a high fever they were trying to figure out why and then in the morning she had a large amount of fluid on her chest x-ray so they had to sedate her again and put in another chest drain in her right side. Then Wednesday afternoon she stopped breathing which was very scary. Code Blue is nothing you ever want to hear over the hospital announcement associated with your child's room number. The response was amazing. In a matter of 30 seconds there were 40 doctors and nurses, 10 different machines and a cart with every imaginable thing you could need at her bedside to help her, which we were very grateful for. I was anything but calm, it was a scary few moments but they got her stable and moved her back to the CICU. They figured that the pressures in her lungs and chest got too high which causes the right part of your heart to kind of freeze up and not pump, is the basic diagnosis. Today she's had some heart rythm issues so they gave her some meds for that. So they're just watching the fluid output from the chest tube now and making sure everything else stays good. Hopefully the weekend will go better for her. We finally got a little smile or two out of her for the first time since the surgery today!
She had a fever so they put a cold washcloth on her head and it looked like she had bunny ears!
We finally get to hold her which is great, although moving her along with all her tubes and wires to your lap is quite a challenge!
The nurses made this cute poster to hang in her room! It tells all about her, they are all so great and kind taking care of Lyla!
She had a fever so they put a cold washcloth on her head and it looked like she had bunny ears!
We finally get to hold her which is great, although moving her along with all her tubes and wires to your lap is quite a challenge!
The nurses made this cute poster to hang in her room! It tells all about her, they are all so great and kind taking care of Lyla! 
