After spending the week in the hospital i'm not sure we have any real firm answers. They ran a bunch of tests and decided that she needed to come home on pressurized air to keep her airways stimulated to stay open so she keeps breathing. She can't have any extra oxygen because of her heart condition and her over-circulating too much blood to her lungs already which is what they would treat a couple of the problems with so it is a fine line between trying to get her to grow big enough to be ready for the surgery and keeping her problems from her condition to a minimum until then. She has had a couple of her breating episodes since we've been home which is scary but we are going to have to get used to that a little I guess. We're just watching her and meeting with doctors regularly and taking it day by day. It breaks your heart to watch your children struggle, she is just too sweet I wish she didn't have to deal with this until she has her surgery. I can't thank our family enough for taking over watching the kids at home so we could be with her and for sitting at the hospital holding her so we could have little breaks to go home to the kids for a bit. We are so lucky to have the greatest family and appreciate all the help and support more than words can explain!
Kyra and Adrie made these cute signs they sent up for her! We put them in her bed!
KSL radio brought by this moose for her as a donation to all the pateints. It was funny that it is at least four times her size, but very thoughtful and kind.
All hooked up and ready to go home! Hooray! The machine she is on has to be plugged in the wall, not very portable at all and very loud so we're stuck at home for a while or somewhere that has a plug and doesn't mind the loud constant noise.